Thursday, August 13, 2015

Cool like dad

I think we found the onesie Little D. is wearing in this photo in the boys section somewhere. She and Daddy match with their glasses and 'staches! 
And yes, this photo was taken at yet another doctor's appointment. Yesterday, Little Dorrit's pediatrician looked at her rash without having her dressing changed. It was changed today because somehow she managed to move the bio patch still under the dressing which helps keep infection away from the insertion site on her chest. The rash still looks bad to me but so far, she hasn't had a fever and she's still acting like her normal self. Today, we had a small incident where Little D. was army crawling around and she turned her head and didn't see the corner of my dresser because it was on her blind side. Somehow, she ended up cutting the inside of her mouth - we think she cut the frenulum in her mouth because it bled a lot. Poor thing. I called the doctor and this doesn't seem to be an unusual injury for a young child. She's doing ok now but it was a bit traumatic for us earlier.

Monday, August 10, 2015

Monkey feet

Lately, Little D. has been grabbing things with her feet a lot...like a monkey does! It is so funny to see and she is so strong! Trotwood never did this so it's neat to see her explore things differently. This past week, we've seen Little Dorrit sit up on her own a lot more and she's continued climbing things. She likes to clap whenever she sits up on her own because when she first started doing it, we would cheer and clap for her and now she's gotten to be a pro at transitioning to the sitting position so we forget to clap for her sometimes but she still does it!

Our very latest medical adventure with her is that she has developed a rash underneath her dressing for her central line and we have been working with medical professionals to try and figure out how best to treat it. I'm telling you, there is never a dull moment with her!

Friday, August 7, 2015

Eating


As of Wednesday, this girl is speech therapy free! Hooray! After months of weekly visits, Little Dorrit's speech therapist made the determination that Little D. has the skill she needs to eat and that she can do it. Now, I wouldn't necessarily say that our girl is a fan of food - she's not actually - but she will eat. We still have to use her g-button to make sure she is eating enough calories to grow and gain weight but we will continue to try to give the majority of her food by mouth including baby food solids. Over the next few weeks, we are going to try out different foods with her and see how she does. Tonight, I fed her a few mashed up beans and I think she liked them. She sure has come a long way. Maybe someday, she will actually learn to enjoy eating. 

Wednesday, August 5, 2015

Home!

Just wanted to let everyone know that Mr. Rochester and Little Dorrit made it home safely last night. Her doctors were successfully able to splice a new end onto her Broviac so no operation was needed. Hooray! Little D. is doing great and we hope for no more hospital stays in the near future!


Tuesday, August 4, 2015

Not exactly a trifecta

When I think about a trifecta, I think of the universe and the stars aligning in such a way that three monumental, amazing things happen to create some almost perfect, happy-sigh-worthy situation. Trifecta. In our case, yesterday, we experienced something more of a triad of trials than a trifecta (although I'll still hold out for that trifecta someday).
  1. Saturday, we took our second car to the shop because the tire pressure light was on. They weren't able to get to our car that day so it sat there over the weekend. We found out yesterday they need to order the tire and it should be in today or tomorrow. Random. I know, they need to order the tire? No problem. We have another car and we were a one car family for eight years. We can handle that. 
  2. Last night, I'm driving home from work and Mr. Rochester calls me and says, "I think we have a serious problem." I listen as he tells me he thinks there is a puncture somewhere in Little Dorrit's Broviac (central line). He said he saw blood on the outside of the line and then found some on the changing table. This is serious because her central line is what we use twice a day to give her the medication she needs to be alive. We made several calls to figure out what to do and were told to take her to the ER at Arkansas Children's hospital which is three hours away from us. *sigh*
  3. Trotwood's first day of school is today. And last night, was "Meet the Teacher" night. 
So, really, are these things insurmountable? Nope. They just all happened right at the same time and required a lot of thinking on our part and help from some great friends (and of course, lots of prayer!). But, I think everything will be okay. And admist all of this, here are the tender mercies I've found:
  • Mr. Rochester made it to Little Rock safely and the medical professionals there found the puncture in Little Dorrit's line (and it is a visible hole!). She will have surgery sometime today to either patch or replace the line. I'm guessing they will just replace it. We think she got the puncture from all of the army crawling and climbing that she's been doing lately - the line must've bent in such a way that it weakened in a spot and eventually created a hole. 

  • Mr. Rochester's best friend was able to meet him at the hospital in Little Rock and stayed with him late into the night - I'm so glad he wasn't there alone.
  • Little Dorrit was able to get an IV put in shortly after arriving at the ER which only put her a few hours behind on getting her evening dose of Ceprotin. 
  • Mr. Rochester noticed there could be a puncture in Little D.'s line yesterday around 4:30 which gave us some time to call around and still find a doctor or nurse to talk to to help us figure out what to do. I would have sent them to the local ER but Mr. Rochester felt like he should take her to Children's in case she needed to have surgery. And he was right. 
  • With the help of a great friend, we made it to and from the "Meet the Teacher" last night. Trotwood's teacher seems great! And he was on time to his first day in first grade. AND I didn't cry. I think he's going to do great in first grade. 
  • Our tire should (hopefully) be in today and I'll be able to pick our second car back up. 
  • I have a job that allows me to work from home a lot so when this type of thing happens, being without a car is not too big of a hindrance.  

Saturday, August 1, 2015

Our March 2015

As the year moves on, I continue to be months behind on documenting our weeks (much in part due to heated arguments I have with my computer about its performance). Despite that, I still want to try to do it. So, although I'm months behind, here is our March 2015.