Physical and occupational therapists have also begun seeing Little Dorrit in our home. She seems to be doing well in both areas, although, of course, because of her time in the NICU, she is developmentally behind. She doesn't roll over and has weak muscles, but I know she'll be able to catch up at some point! Her physical therapist also recommended that we get a scan done of her head. Because she's spent so much time lying on her back, the back of her head is pretty flat and she may need to wear one of those baby helmets. I don't know much about this but after doing a google search, it seems like there is some controversy on whether or not these helmets are actually effective.
Little Dorrit is also supposed to be starting speech therapy but for some reason we've been having trouble getting the doctor's script back for her on this and she can't start speech therapy until the therapy team has this. The amount of food she takes by mouth has decreased to about 15-25 mls and before we had it between 30-50 mls per feeding. So, that is a little discouraging. Every three hours during the day, she gets 100 mls of formula. Whatever she doesn't take by mouth, we put through her feeding tube. I hope that once she starts speech therapy, she'll do better at taking a bottle.
Two nights ago, Little Dorrit pulled out her G-button but this time we did not go to the emergency room. Mr. Rochester and I just followed the instructions to put it back in and I think we did it correctly...but I feel like I still need to call a doctor or someone to confirm. What if we did something wrong somehow? She's had her feedings since then and I think everything is okay...but it's still hard not to worry that we messed something up somehow. Sometimes, all this medical stuff makes me weary.
Today, I started back to work part-time. I'm still able to be on the catastrophic leave program and working part-time will allow me to stretch out the hours I have left in that leave program. I'm hoping working part-time for awhile will help us get everything more figured out to where we can manage it when I have to go back to work full-time. Who knows? Maybe by that time Little Dorrit will be using just a bottle for all of her feedings!
I seriously can't believe how much she loves the little Lamaze horse she is grabbing in this photo. It's one of her favorite things.