Monday, December 1, 2014

Surgeries

I love Little Dorrit's wild eyes in this photo. Again, I don't want to jinx anything by saying this but Little Dorrit is really doing well. She is finally stable enough to go under general anesthesia for some surgeries she will need before she can come home. Yes! That's right! People are actually daring to say the word "discharge" now regarding her situation. It truly is a miracle! 

She needs to have three surgeries and the plan is to do them all at once, possibly this Thursday. One surgery will be to insert a Broviac catheter which will provide us with a way to give her the Protein C she needs intravenously. We did discuss giving her daily shots instead of the Broviac but the doctors concluded the Broviac would be better while she is so young. Another surgery will involve removing the hemorrhage from her right eye so she can see out of that eye. At this point, I'm not sure if ophthalmology will actually be performing this surgery on Thursday or just doing an examination of her eyes while she is under general anesthesia. I should find out more about this soon. And the last surgery will be to give her a feeding tube called a G-tube or gastronomy tube in her stomach. Because she was on a ventilator for so long, Little Dorrit seems to have developed an oral aversion and shows little interest in eating by mouth. She is making progress taking a pacifier and should eventually learn how to eat by mouth again but giving her the G-tube will ensure she is getting the nutrition she needs and get her home more quickly. 

So, lots of changes and some exciting stuff happening. Today, Little Dorrit was taken off of her diuretics and I'm hoping her little body will be able to regulate itself without them. Last time when she was taken off of her diuretics was when she developed the chylothorax and that was really scary. I feel like she is in a better place now and we are hoping nothing strange happens with the removal of her diuretics. She continues to be weaned off of her morphine and only gets it twice a day now. The goal is to continue to wean her off of medications so she doesn't have to go home with so many. Hooray! Home is in sight!

10 comments:

Katie @SwimBikeQuilt said...

Wow, wow, wow!! We will pray her surgeries go well. I can't believe how far she has come. And she is pretty stinkin cute!

Kelly said...

That's a great update! We will say extra prayers for her this week during surgery. It's so exciting to think she could be home with you soon. Amazing! I love seeing her sweet face. She's so adorable!

Mary said...

This is amazing!!!! We are praying all goes smoothly and that you can all be home together soon!!! Love you all so much!!

N2HIM said...

Great news!!!! Praying her surgery goes well and is able to come home soon.

Angie

Joeby said...

This is SO fantastic! She is beautiful and strong - a little angel!

Lissa Chandler said...

She is literally the cutest baby ever. I love this update!

Amber T said...

So much wonderful news, and so much to hope for and look forward to!

Jenny said...

She is so adorable. Can't wait to hear that she is safely through the surgery and at home with all of you! Thanks so much for the updates.

Jani said...

How exciting! She truly is a little miracle baby and SUCH a doll!!!

Kel said...

Excellent. I LOVE that medicine has progressed to a point that Broviac's, g-tubes, medicines, and surgeries can help our kids live normal lives. It will all feel second-nature in time. All our love.