I almost don't want to share this for fear of jinxing everything, but since I arrived in St. Louis on Saturday, Little Dorrit has been doing really well! When we got to her room on Saturday, the nurse asked me if I wanted to hold her. I was really surprised because I didn't think I could hold her while she had a chest tube. The nurse said it was ok so I got to hold her again Saturday and have been able to hold her every day so far!
There is some talk of possibly extubating her ventilator tomorrow and replacing it with nasal cannulas. This is very exciting as it just provides more steps to her breathing on her own! She is back up to full feeds on her special formula with minimal spitting up. And the best part is the pleural effusions have not reappeared...yet. The chyle fluid output in her chest tube is very minimal right now so much that as long as she continues on full feeds with no more pleural effusions, they might even take out her chest tube! See, I'm telling you all this and none of it may actually happen but it's given me more hope and helped my heart feel lighter. The team at Boston Children's is still going to review Little Dorrit's records to help make determinations about her lymphatic system but this will probably take several weeks for them to do. In the meantime, we continue to hope and pray for her body to heal.
"Hope has the power to fill our lives with happiness. Its absence—when this desire of our heart is delayed—can make 'the heart sick.' Hope...is like the beam of sunlight rising up and above the horizon of our present circumstances. It pierces the darkness with a brilliant dawn. It encourages and inspires us to place our trust in the loving care of an eternal Heavenly Father, who has prepared a way for those who seek for eternal truth in a world of relativism, confusion, and of fear." Elder Dieter F. Uchtdorf, The Infinite Power of Hope