Thursday, October 16, 2014

Under Pressure

Yesterday was challenging. We received a call in the morning that Little Dorrit's lungs were full of liquid and that the resulting pressure was preventing her right atrium from working. Despite this, her heart was still able to circulate her blood but it just had to work overtime to accomplish its task.
They told us the procedure to drain her lungs would not happen until 9 p.m. that night and that afterwards someone would give us an account of the procedure. After a nerve-racking day with our stomach in knots, we received a call somewhere between 11:30 p.m. and midnight explaining that the procedure was a success and that they removed 4 ounces of fluid from her lungs.

Little Dorrit suffered from, yet again a rare condition, called chylothorax which is a type of pleural effusion (excess fluid that accumulates in the pleural cavity or the fluid-filled spaces that surrounds the lungs). It is most commonly a complication of thoracic or cardiac surgery. As for why this is happening in Little Dorrit, the doctors are stumped. Chylothorax usually results from a leak in the thoracic duct or one of the main lymphatic vessels that drain to it. The doctors have taken Little Dorrit off all breast milk and formula and have placed her on a special diet fed to her intravenously and later will be moved to a special formula until the doctors determine she can have breast milk again.

In a bit of good news, Little Dorrit has almost returned to all her pre-proceedure levels regarding respiration.  The doctors could not get out all the fluid of the pleural effusion but feel she should not have any serious setbacks as a result of yesterday's issues. Her cardio echogram and X-rays do not show any blood clots or issues.  

Little Dorrit has an MRI scheduled for tomorrow at 2 p.m. if everything goes well. We have been waiting a long time for this imaging to take place as it will give us a clearer understanding of what exactly is going on in her brain. The blood clot in her superior sagittal sinus is still there in addition to spots that may be small bleeds. Tomorrow's exam will help us better understand the extent of the bleeding or clotting that has been happening in Little Dorrit's head. I am a little nervous to find out the results of the MRI and can only hope that the treatments they have been administering are having a positive effect even though they do not know exactly what is going on in her head. 

As always, thanks to everyone for their prayers and well-wishes and please keep Little Dorrit in your thoughts tomorrow. -EA

6 comments:

Katie @SwimBikeQuilt said...

Oh my goodness. That sweet little baby is going through so much. And you guys. Hugs and prayers. And happy thoughts.

Joeby said...

Sending lots of love and prayers. Thank you so much for the updates.

Kelly said...

I'm so glad her procedure was a success! We will be thinking of her all day tomorrow, and you guys as well as you await the MRI results. Those days in particular sometimes seem even longer than your average nicu day. We actually think about you all everyday anyway. :) always praying. Love you friends.

Nonnie Light said...

Keeping your little sweetie pie and the two of you in prayer.

Mary said...

Sending lots of love and prayers for you all!!

Jani said...

What a roller coaster you guys are on. Prayers and hugs. I added you all to the temple rolls again on Wednesday. Praying for a good scan result tomorrow.