Monday, October 6, 2014

Sunshine day

Trotwood attends a year round school and does not have school this week. The weather outside is beautiful with just the right amount of sunshine and coolness in the air and Trotwood spent a lot of time outside today. He built fences for his cars and then would wreck them with his scooter. Although I feel anxious to go back to St. Louis and see Little Dorrit, it has been nice to be able to spend the day with Trotwood.



Little Dorrit has done well on the conventional ventilator since yesterday and we just hope that the medical professionals can be successful weaning her off of her oxygen. What usually seems to happen is, they start to wean her down and then she gets really mad and worked up about something, like when they change her diaper, and then they have to go all they way back up to 100% on her oxygen while giving her some extra sedation or pain/anxiety medication to get her to calm back down. So, it's almost like two steps forward, one step back. As far as I know, it seems like they are keeping her blood clotting and bleeding under control but I think we will know more about all of that when Little Dorrit is well enough to have an MRI and other tests.

4 comments:

Jani said...

That IS a sunshine day! Sounds like LD is an opinionated little one, I wonder who she got that from! ;) I'm so thrilled that she's done well on a conventional ventilator for the last 24 hours. Yay.

Katie @SwimBikeQuilt said...

Yay for sunshiny days! And hopefully the wean continues!

Kelly said...

I love watching little kids line things up! That's so nice you got to be with him all day. I'm so happy to hear the baby is doing well on the ventilator. Fantastic! I appreciate your updates!!

Mary said...

Thank you for your updates!! So happy she's been doing well on the ventilator!! We keep you and your sweet baby girl ever in our prayers!! We love you so much!!