Friday, October 24, 2014


Not the best day. Last night we drove up to St. Louis and this time Trotwood came with us. When we saw Little Dorrit this morning, she had been downgraded from a crib to one of those open tables she was on previously. Bummer. This was mainly because of the chest tube she has now that continues to drain fluid from the cavity around her right lung. Apparently chest tubes and cribs don't mix well. A nurse practitioner also informed us that the area around Little Dorrit's left lung is also filling with fluid. If the fluid fills to where Little Dorrit has difficulty breathing, then they will insert a chest tube on her left side as well. And even just having one chest tube  means we can't hold her. And she could have the tube(s) in for weeks until the fluid stops accumulating. 

They have also stopped her feeds temporarily because she started spitting everything up today. And they don't know why. The lymphangiogram did not tell us anything because for some reason the dye has been very slow to move through Little Dorrit's lymphatic system. And they don't know why her system is so slow. So, we do not know why she is leaking fluid around her lungs. She is also on lots of sedatives and medicines to help her manage her pain and keep her comfortable, including a morphine drip. Why is it discouraging to me that my infant is on a morphine drip? This is all just very frustrating because a week or so ago, it had seemed like Little Dorrit was getting better and now she seems to be regressing and facing new challenges. I hope she can overcome these new challenges and avoid anymore roadblocks to her recovery.


Mary said...

Praying for your sweet baby girl, and for you!! Love you!!

Jenny said...

So sorry to hear this news. Thinking of all of you with love!

Mrs. Cinnamon said...

Maybe it's one step back with 10 steps forward in the upcoming days!! Much love!!