Thursday, October 30, 2014

Mystery...

Today, we found out that results we received yesterday of Little Dorrit's MRI were inaccurate. The initial results proved to be inaccurate as later in the day, the chief of radiology reviewed her MRI study and disagreed with the radiology team that initially reviewed them. He believes, as does our current neonatologist, that Little Dorrit's lymphatic system did not form properly and they have requested permission to send Little Dorrit's records to Boston Children's hospital to consult with a team of Harvard doctors who work primarily with the lymph and vascular systems. We were told there is one experimental drug that can been used  to possibly help her live with this lymph/vascular system issue but there is no surgery or anything else that could fix this issue. There is one drug and it may or may not help her and she may or may not be a candidate for it. The doctors believe this new challenge is unrelated to Little Dorrit's protein C deficiency. We asked the doctor we spoke with today about the worst case scenario and it is bad. I need to stop thinking about the worst case scenario, but my heart truly breaks at the possibility of parting with yet another child.

I don't really have any positive or inspiring words to share tonight. A friend of mine shared this video with me recently and I thought I should share it now as it taught me more about faith. Thank you for your continued love, support, and prayers.

5 comments:

Mary said...

Oh, Aria!! Praying and praying!!! We love you all so much!!

Anonymous said...

Praying for your sweet baby tonight.

crystal said...

Love you Aria!!! I am praying for your sweet family!

Jani said...

Oh Aria, I love you. Prayers and more prayers.

Cormorant said...

Love you so much. Continue hoping even when it seems dark. Xoxo