We are still trying to count the tiny victories and keep hoping for larger ones (I'm trying not think negatively about impending MRIs and what that may reveal to us). Trotwood will be staying with some friends from church this weekend and although I feel sad leaving him again, I know we need to spend time with Little Dorrit this weekend and Trotwood would not be content at the hospital at all. All this back and forth is exhausting and I am so grateful for the love and support we have been feeling from friends and family. Thank you for all your thoughtful actions and continued prayers for our family.
Thursday, October 9, 2014
This morning we received good news from the NICU and one of the nurses texted me this photo of Little Dorrit with her eyes open. I just love that her eyes are open and she is all swaddled up! We've mostly seen her with her eyes closed and just sprawled out in froggy style on her NICU bed with a tons of tubes attached to her. Also, her head still looks swollen but it is a vast improvement from where we left her on Sunday. Her face used to be so swollen, she could barely peek out of her eyes - this is the widest I've seen her eyes open so far. So, more good news is that Little Dorrit continues to do well on her conventional ventilator and she has been weaned down to 5 from 20 on her nitric oxide. Over the next few days, they will slowly try to wean her off of the nitric oxide completely and I know our doctors are working on trying to figure out what her long term care will need to be to deal with her protein C deficiency after she leaves the hospital. I still feel like, even after she is off the ventilator, she will still need to be in the hospital for some time until her toes are as healed as they are going to be and we have a long term care plan for her. But, we are making progress and that is encouraging!!