I'm also glad we brought Trotwood with us because I got to see random things like this - Trotwood slumped in his seat with his monkey backpack/leash on trying to sleep against the window while clutching a stuffed Spiderman guy.
We arrived home again tonight and I feel like this time our visit to St. Louis was more encouraging, at least for me. Yesterday, we sat down for probably an hour with a neonatologist who is working with Little Dorrit and although, the doctors don't downplay how sick she is, they also tell us when she is making improvements and at least, today, I'm finding comfort in that. As of 3 pm today, she has been moved from an oscillator to a conventional ventilator and we are hope hope hoping she will be able to tolerate that. So far, so good. Pray that she can tolerate the ventilator as being on this type of breathing apparatus will help her get better, be a bit more mobile, and allow the doctors to do different tests on her that they are unable to do when she is on an oscillator. Also, if she stays on the conventional ventilator, the next time we see her, we can probably hold her! Exciting!