It's been almost a year and a half now since our last child was born and died. Since then, we have been looking for answers. We've met with various medical professionals, undergone different genetic tests and we are now at a dead end. My last blood test result for platelet antibodies relating to NAIT was negative and the geneticist and maternal-fetal specialists we've been working with do not know where to go from here. I keep asking questions about what else can be done to help us find answers but feel like I am grasping at straws. Every test we have taken has come out negative or shows that our daughters should have been born healthy, but I still feel like there must be something wrong since our two girls' cases are so similar, in my opinion.
Briefly, our oldest (2008) and youngest child (2012), both girls, were born via emergency C-section at 37.5 weeks due to a lack of fetal movement and decreased fetal heart rate. Our first daughter had confirmed intracranial hemorrhaging, low blood platelet counts, and she lived for two days. Our second daughter had very low blood platelet counts with no confirmed intracranial hemorrhaging although a biophysical ultrasound performed just before she was born showed a large, dark spot in her head (which could have been intracranial hemorrhaging). She only lived for an hour. Autopsies of both girls were inconclusive. We have had a healthy boy in between both girls. My husband and I have both undergone microarray and mass carrier screening genetic testing. I have also been tested for NAIT antigens and antibodies. All test have come back negative. In this day and age of technology and medicine, it is difficult to believe that we have had two baby girls born who have died shortly after birth with no answer or diagnosis to the cause of their deaths. Somewhere, there has got to be someone that has experienced what we have experienced and found an answer.
The unexplained loss of two full-term babies is heart-wrenching. We love our girls and speak of them daily wondering what they would be like if they were alive and with us today and how they would get along with their brother. My husband and I want to have more children and feel like our son needs a live sibling. We are looking into adoption yet I still want to find some
medical answers for peace of mind and in case whatever happened to our
daughters may someday affect my son and any future family he may have. One of the most difficult things about dealing with the deaths of our daughters is that I have no way of knowing if this will happen again or how we can prevent it if we decide to have another baby. The birth and death of our baby girl in January 2012 was a shock to us because our son had been born healthy in between our girls.
So, here I am making a plea. I am asking you who have friends and families that have children, you who may be a medical professional or have a family member or friend who is a medical professional, you who may have heard of someone who has experienced or if you have experienced something similar to our situation, please help us. Help us find out why our two daughters died in infancy and how we can prevent this from happening again in the future. Even if my husband and I find out that we shouldn't have any more biological children, at least we would have an answer. Please help us make contact with someone who might be able to help us find some answers. If you have any information or referrals to send our way, please email me at helparia at yahoo dot com. You can also leave me a comment here or send me a facebook message. Thank you for any help in sending us in the right direction.
Wednesday, June 26, 2013
Monday, June 17, 2013
I'm so excited to announce that I'm joining a team of fabulous women to provide online digital scrapbooking classes at Scrapaneers.com! Instructors will be teaching classes on a myriad of topics related to digital scrapbooking techniques ranging from how to get started (I'll be teaching the basics class) to learning how to achieve certain styles and techniques in your layouts. I'm so excited for the site and can't wait until it opens in the fall! If you're interested in learning more about Scrapaneers or signing up for a class, just click on the banner above!